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Achieving justice in genomi...

Achieving justice in genomic translation [re-thinking the pathway to benefit

Burke, Wylie

Oxford University Press 2011

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Human genetics- Genomics- Genetic screening-

Monografía

monografia Rebiun19253791 https://catalogo.rebiun.org/rebiun/record/Rebiun19253791 110316s2011 enk sb 001 0 eng d 9780195390384 9780199909742 UPM 991005763456304212 UPVA 997917248403706 UAM 991008076870404211 UPCT u383958 CaPaEBR CaPaEBR UMA.RE Achieving justice in genomic translation Recurso electrónico] :] re-thinking the pathway to benefit edited by Wylie Burke ... [et al.]. Oxford New York Oxford University Press 2011 Oxford New York Oxford New York Oxford University Press x, 212 p. x, 212 p. Ebook Central Includes bibliographical references and index Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks Modo de acceso: World Wide Web Ebook Central Human genetics- Research- Moral and ethical aspects Genomics- Research- Moral and ethical aspects Genetic screening- Moral and ethical aspects Burke, Wylie Ebook Central (Servicio en línea)

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monografia Rebiun19253791 https://catalogo.rebiun.org/rebiun/record/Rebiun19253791 110316s2011 enk sb 001 0 eng d 9780195390384 9780199909742 UPM 991005763456304212 UPVA 997917248403706 UAM 991008076870404211 UPCT u383958 CaPaEBR CaPaEBR UMA.RE Achieving justice in genomic translation Recurso electrónico] :] re-thinking the pathway to benefit edited by Wylie Burke ... [et al.]. Oxford New York Oxford University Press 2011 Oxford New York Oxford New York Oxford University Press x, 212 p. x, 212 p. Ebook Central Includes bibliographical references and index Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks Modo de acceso: World Wide Web Ebook Central Human genetics- Research- Moral and ethical aspects Genomics- Research- Moral and ethical aspects Genetic screening- Moral and ethical aspects Burke, Wylie Ebook Central (Servicio en línea)